It is harder than it looks. Much harder, actually. I didn't realize how much harder it was until today. Everyone assumes, or maybe they don't even think about it, that when you are sick and then you get better, you are just that...better. What many people don't think about in regards to chronic illness, including myself, is that even after the shit storm of bad health, you will still not be quote unquote healthy.
This quote speaks volumes in just one sentence.
A lot of people ask why I am so open with my disease, or even suggest that I just want sympathy. (Honestly, the last thing I want is a pity party.)
The reasons I share my journey with Crohn's disease are countless, but these are some of the most important to me:
- Helping me to heal mentally and spiritually, which in turn allows me to heal better physically
- Proving that perseverance and a strong will can help you get through even the worst of times, as well as having a great support system
- To take away the stigma that surrounds diseases of the gut and to empower young women and girls to not be embarrassed by these illnesses and what they entail
- To raise awareness and funds to find better treatments and, hopefully, someday a CURE
- To change even just one person's ideas about IBD, or educate just a few people on what I and others go through, or give one girl the courage to address her illness and remain confident and feel beautiful
If I achieve more, wonderful, if I achieve less, that's fine too. Ultimately I believe that my story will heal me, along with medicine, time, and loads of patience.
Love & Thanks,
A lot of people find comics like these to be disgusting representations of our medical community and big pharm. They use these to prove how "backwards" we are when it comes to health and treatments. They blame the government, doctors, pharmaceutical companies and the like for the high prices of medications without really knowing the billions of dollars that go into creating them.
Oddly, as sad as it is, this illustration represents my life with a chronic disease. Without medications like Humira, Prednisone, etc., I wouldn't be here today. Yes, they are expensive, hell my shots cost $5,000 a month (thank God for insurance, I pay $5), but they are keeping me ALIVE and for that, I am grateful.
"TODAY! Today is the day I am going to get out of bed early, hit the gym, tackle the tasks I've been putting off forever, and I am going to feel GOOD." We ALL say this, and if you're me, you say this every day. Also, if you're me, it never happens. There's a fine line between the Crohn's side effects (the fatigue, joint pain, muscle aches, hell it even feels like my bones hurt) and between being moody, depressed or upset. With any chronic illness, I think it's a little bit of both. Actually, scratch that, a whole lot of both.
I was so excited for today, I really couldn't wait. It was going to be the perfect date. Many things I love all fused together into one magical day. It's unreasonable to think that I could have a good day out on the town (city) and feel completely wonderful. Correction, it's unreasonable because I have an autoimmune disease. Or just plain shit luck..or just the plain shits.
Like Ed Sheeran so blatantly says, "don't". I mean it, just don't. Don't e-mail me, text me, call me, facebook me, tweet me (you get it now right?), some article you read about a "Cure for Crohn's Disease" and how if I eat the fruit of this rare tree I will never have another flare and how all's I need is one round of antibiotics and my life will be changed and my disease gone. Don't you dare minimize the research of thousands of brilliant physicians and scientist, billions of dollars in studying the diseases of IBD with an article you got from your hippie friend who found it stealing their neighbors WiFi.
Alyssa's Random Ass Life
"I wear many hats, but more shoes." - I said that.